Thursday, June 13, 2019

TIME TO SHARE HIS STORY AND OUR STORY AGAIN....

Well, a lot has happened since the last post on this blog, over a year ago, when Mike had his UTI.  I have been so caught up in caring for my husband, that I have not found the time or the inclination to write until now.....Mike never made it into the respite home and nor did we get that break!!  He was screaming and shouting so much that day, that they refused to admit him.  Instead, they sent him to the government hospital as they suspected that he had a urinary tract infection, which he did.  He spent 3 days in hospital on intravenous fluid until the infection cleared up and then I brought him back home.
My husband is now in about the 6th year of his illness and I was told by the neurologist that his particular type of dementia (Corticobasal Degeneration) has a life expectancy from onset of 6-8 years.  I question all the time as to how the person actually passes, it is still a mystery to me and no-one can say.  I have heard that most get pneumonia or septicaemia or choke.  All are such horrifying thoughts to me and I sincerely hope that he does not encounter any of these.  I watched my mother suffer with colon cancer and it was absolutely horrific, however, the support and knowledge of the illness was available, but with my husband's illness, little seems to be known.  It is truly the worst thing to watch and my heart feels like it is broken in two, watching someone "just exist".  There is no quality of life anymore.  The only thing that seems constant at this point, is that he seems to still enjoy his food and especially treats.